Tips for Living with MTHFR (and what to AVOID)

I have mthfr double homozygous .
I found out after I had 2 brain strokes and they couldnt figure out why.
I was so sick, I developed an auto immune disease and was so so sick I could not walk.
5 years later at 54... I changed my diet..no dairy, no gluten and started suppliments full complex bs, d3 omegas & mthf ... I am now hiking in the woods again and exploring beautiful places. It was a life changer for me !! Im proof you can change your health with epigenetics :) ❤

I would like to add, that when taking B complex plus folate, in the afternoon I would get so tire that I had to take a 15 minute nap, and then I would be excellent......then I was told that it is best to take vitamin B complex at the night..............game changer for me...............any opinions? Also the folate had me irritated a lot of times!!!! some of the pills had to much........i don't take it as often and I fell much better...........has this happen to you, that folate would make you anger, and anxious, short temper, etc?

What is best for someone who is vegan and has MTHFR mutation?

My daughter has 2 bad MTHFR genes (C677T variant). She suffers from almost daily migraines (sometimes manageable, sometimes brutal). I learned from you to keep folic acid out of her diet, which I'm doing (also doing my best to clean up toxins like pesticides and conventional soaps from our life). My father in law thinks that changing her diet and lifestyle like this will make her anxious (which is funny because all I've done is gotten back to food in its God made natural source. Haven't even cut out a single food group. Just eating the way nature provides with grass fed meats, veggies and fruits from the back yard and sprouted spelt flour to replace store bought flour, and somehow that's supposed to cause anxiety in his mind). He questions whether or not science backs this up across the board. I have been learning from you, Dr. Lynch for a couple months now, and I am certain that I am making the right choice getting these things out of her diet. I am determined to cure her migraines at the source. They don't think I can and that the changes are too drastic (they also refuse to change their diet from the toxic standard american diet). I'm feeling frustrated. I know I'm not wrong, and I believe that migraines are curable. I wish they would trust what I've learned. Or learn about it themselves before they dismiss it.

So glad to have found you. I just ordered both Dirty Genes and The Histamine Workbook. Thank you so much for helping those of us who are just everyday people be able to take action and manage our health.

Few of the doctors I have had since my diagnosis of double homozygous MTFR even care. They think it’s stupid and told me it was. They said it was a “mere enzyme thing” and no cause for alarm. I told them what my first PMD said and they called her to consult with her and came back with, as to just humor me for a and g’s, to continue taking the B 12, B6, and folate. Nobody clues me in on what folate to take. I had to find that out myself a few years after the fact. So now I take methylated folate. Before I have just been taking the cheap fake version from ACME supplements and such and such stuff. I suffer from a lot of health issues because of the MTHFR. Autoimmune issues, fibromyalgia, tachycardia of which no one seems to know why I have it, Hashimoto’s Disease sure has something to do with that when you’ve got a diagnosis of MTHFR…. I’ve got serious joint pain. IBS, did have GERD till I went on Keto. It is a pure hell that I wouldn’t wish on my worst enemies if I had them. To have a doctor stand before you and tell you that you’re sick as hell and that is just the luck of the draw is a slap in the face when a simple enough and cheap enough can help you live a better life but no… they want to pull out the prescription pad and put you on the methotrexate, the Enbrel injections, the vasodilators and the propranolol or the metoprolol to help your heart rate somewhat calm down. The bastards…

What are the interventions you can do if you have to have surgery and they use Nitric Oxide and you have MTFHR?

I have severe chronic migraine with psychiatric symptoms
Taking Magnesium for my migraines led to severe insomnia (contrary to what is expected, to aid sleep).
I searched about similar cases and led me to people who have MTHFR.
Does it make sense? Should I continue testing for homocysteine or MTHFR?

Do not take Montelukast aka Singulair either.

What about nitric oxide?

Hospitals are aware of this but feign ignorance cause they don’t wanna get sued n lose

Love your knowledge. I had a question though that I can’t seem to get answered by other ways. I did the strategene kit when you were sending those out and now when I try to access my report, it says access denied. I know you don’t do the kits anymore but I am bummed I can not get my report when I need it most.

Should persons with COMT use methylated vitamins?

Then why does Dr Jerry Tennant recommend N02 lozenges to all his patients in his protocol? I’m confused.

Guys/Gals...think of how many genetic variants wr must all have, d/t having 30,000 genes! Well be following new "polymorphisms", until the end-of-time. We're speak8ng of just ONE here.
Eat well...do the best you can in this short life. Love and live for God...help others...accept Jesus as YOUR Savior - die,...and GO HOME. Heaven shld be our goal.😮

I have 20% less capacity...1298. I need to change my diet so I can have 2 more healthy bebe!

I got addicted to nitrous oxide for a couple months last fall. Definitely worsened the neuropathy I was already experiencing as a result of my MTHFR mutation. I lose balance everyday and cannot sleep on my side without my limbs going numb or eat any carbs or processed sugar without the neuropathy worsening. Never thought nitrous oxide contributed to this until I heard another woman share in a nitrous recovery group about how her abuse of the drug wreaked havoc on her body bc she had a genetic mutation. It’s validating to hear this from a Dr.

Wow! Just found out my son has 2 copies of 667. 4 years ago he had nitrous oxide gas for the first time for just a few minutes to prep him for an MRI. Thankfully, he ended up fighting (very unlike him) to take it off so I had them stop. We were in the ER later that night because he couldn’t walk, felt numb, stomach tightness and vomiting. He kept screaming for me to call 911. The ER did nothing. They said it was a “stomach bug”. He had these episodes off and on where he couldn’t stand for a week and nothing was ever done. We were told it was anxiety. He also has autism and ADHD. He is now 15 and still says he has not been the same since. I just ordered your book Dirty Genes. I am praying for the answers that I have searched for for so long.

i love ronald reagan AD

Lots more to avoid if you have the MTHFR gene problem. We have the real Supplement for this - as we did for the past 10 years

My son had a terrible reaction to laughing gas from dental office

I have MTHFR and lipedema…how does this cause lipedema?

Thanks genetics 😒

I have to disagree with the methy forms being best. I am double c677t and do better with your optimal MF vs methylated forms. I feel anxious or upregulated. Folinic is better for me than methylfolate.

@DrBenLynch, after watching many of your videos, i took the bloodtest and showed i have the c677.
I quit my coffee addiction the next morning. 2 days were horrible with malaise and migraine, but i started taking all B vitamins, and folic acid. and i immediately felt better. Lost 3 lbs of waterretention, and im on my 6th day of no caffee, and i feel so much better.
Thank you so much for helping us to become more healthy!!

What is the best way to support a BAD nos3 gene -full MUTATION

Since mold my mthfr has been more apparent, before mold I was 100% normal. Now if I take individual B's I have the same symptoms as if I'm living in mold

I need to find a B complex that works for my body

I have MTHFR, one copy of the 677 and I’m supplementing with a methylated vitamin B complex. This last year have had several issues (long covid, leaky gut, Candida, parasites, dysfunctional cortisol) leading to what I suspect is malsorbtion of nutrients. Despite taking vitamins and minerals, suspect that I’m still low. Do people with MTHFR over or under methylate? Can we have malsorbtion issues despite having MTHFR?

I’m interested to see what your view is regarding the autism spectrum. Apparently 90% of people on the spectrum (I have high functioning autism and adhd), have the mthfr mutation. I have the mthfr mutation and I’m wondering if this actually ‘causes’ high functioning autism/adhd? I also think that it’s 100% of people who have high functioning autism/adhd have the mthfr mutation and the other 10% are possibly misdiagnoses - possibly caused by b vitamin deficiencies which then create the symptoms of autism/adhd…..I also wonder if there’s a link between pernicious anemia and the mthfr mutation as I believe I have that - I’m awaiting testing…

It’s very interesting to see that many auto immune conditions have b12 as a common deficiency but instead of looking at it that perhaps the B12 deficiency ‘caused’ or triggered the auto immune conditions, they say that the condition caused the deficiency. My 23andMe test showed all these predispositions to conditions that are linked to B12 deficiencies!!! I’m hoping that with this knowledge, I can avoid going down the same route as my mum and nan by developing hypothyroidism (got that one unfortunately), then diabetes and then dementia - which are all linked and part of a progressive path. I’m doing everything I can to support my body and have massively changed my diet.

Those medical profesionals dont like you because you get to the root cause so people can heal and manage their illness, you are taking away their customers, I used to be a customer of pharmaceuticals, each month i got my prescription of paroxatine, over 25 years each month, i then learnt that i had no tryptophane in my brain and leaky gut, i healed my gut with L glutamine it took just a few months, then weaned off paroxatine ssri slowly over 6 months with tryptophane amino acid and b vitamins

I have just tried to share this video in France and it is being flagged as going against comunity standards , proof what i said underneath

Great video and information …Would anesthesia or getting a local anesthesia such as something they give you for a routine colonoscopy be dangerous as well?

How would someone address B vitamin levels if they are homozygous C677T and was recently administered laughing gas? (2 months ago). Just supplement with B12? Asking for a friend 😅

Ben Lynch is a hero and a warrior! Appreciate your consistent efforts throughout the years

I did real well until I had some severe trauma after childhood trauma and a bad marriage. I was dx'd in 2014 677t++ and did great working with a genomicist with a nutrition professor who has MTHFR. Recent trauma really taught me and now having Stratagene and Dirty genes I am coming back. I am highly sensitive/vulnerable and am finally really getting the need for boundaries.

How do Redox Signaling Molecules affect this?

Are vitamin B12 shots considered?

So much information it’s so hard to know what is what 😢

Does Tadalafil cause issues with mthfr

just found I have red flagged high homocysteine and fibrinogen activity so need to make a plan. with an LPa of 468nmolar. at 67 with no events so far with a CAC of 167

So from what I'm understanding the best place to start is by supplementing methyfolate and methylated b12. Is that correct or is there something else we should be looking at as well?

What about exposure to nitrous working in dentistry? Is that enough to cause issue?

When I had a full blood count my B12 Levels were raised & I was asked was I having B12 injections for which I replied no So the Drs said that we can redue the test, but as your Folate levels are ok, we arent to concerned...! For which makes me think that B12 isnnt getting in to the cell & is just going round & round:-( I have got a Compromised Immune System due to past work place exposure to toxins, for which I had to have private Toxicology tests to find out what was going on

Where can I find the full interview?

I have MTHFR A1298C heterozygous and MTRR Ile22Met homozygous mutations, and when I take methylfolate and methylcobalamin, I feel overwhelmed, anxious, and experience insomnia. I’m not sure why this happens.

Your telling the truth Dr Lynch

I'm in England I need a practitioner desperately

Boy...dont know why I did it but went to webmd and they really poo-poo the genetic test. They quote the american academy of genetics saying no need to take the test, just treat high homocysteine if you have it. I always said its better to know than not to know.