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People with Rare Diseases don't always have patient support groups to share their situations with. It often compounds the feeling of isolation.
ОтветитьI know my sons Illness is not him but it prevents him from living a normal life. I can’t stand to watch him being sick all the time. I feel so helpless and I can’t help him.
ОтветитьThanks so much for this, I have had vestibular migraines the last 6 years and had to learnt o walk again. I am having a relapse at the moment but I ALOS learnt to rollerskate and got pretty good too! I just need to get the balance down and the acceptance as I still get really upset when I have a relapse and get very depressed very quickly. These videos really helped me x
ОтветитьAren't support groups for mental health all online now after covid?
ОтветитьI have a rare disease that's most likely CNS cancer or autoimmune. It's taking my ability to sleep away and destroying my vision. There's no one to talk to at the moment about it just family. I'm still struggling for 2 years with it and finally got results from my lumbar puncture. Thank you for this video.
ОтветитьWow this is helping so much
ОтветитьAnimals help me a lot
ОтветитьI Can’t do what I’m passionate about. I can’t do anything I even like. I need this to stop
ОтветитьComment below with what tip was helpful for you or share some tips that you may have for coping with chronic illness.
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