Karla's Journey: Beating Cervical Dystonia And Myoclonus With Functional Neurology

Same happened to me. Neck and then spread to the left sholder and scapula. 3 years of Osteopath. 2 months ago i started treatment with a French style ostheopath. He focused in my eyes. Everything is getting better but slow. I wonder if Northwest does online consultations. Im Currently in Argentina. Also Felderkrais method gave me relief and better posture. Thank you for Karlas video. Kind regards, Federico

You look great! Congrats

Do they have doctors in Northern California?

So what’s the treatment?

Anyone recovered from writers cramp?

hello if i got med-induced dystonia can the treatment also help? thank you @northwestfunctionalneurolo5250

I have had Dystonia for 7 years. This month I walked without help for the first time in those years. Cervical Dystonia is amazingly silent. Tremors gone. I saw a huge change by changing my diet to a carnivore diet. I would encourage others to pursue keto or Carnivore removing all sugar and carbohydrates.

I have had cervical dystonia four about 5 years and it is horrific!

How do you get here and do you take insurance? I need help. This has devastated my entire life. Please doctor

Australia is in desperate need of this kind of treatment, if anyone knows somewhere that does it I’d be so grateful, I’m really desperate.

M going thru the same.. I can totally get what you are saying...
Feel for you Sister.. 🙏

How did you get cured??

Does any one from this company respond to people who needs help . Why post a video and don’t give people information. Be a blessing answer these people please I’m begging you . God will bless you even if you don’t believe in him

it’s 6am & i’m crying because iWant to get my neck straight so bad & start talking like normal

Ayurveda, an ancient system of medicine from India, views health and disease through the lens of balancing the body's three doshas: Vata, Pitta, and Kapha. While Ayurveda offers a unique perspective on health and well-being, it is essential to approach cervical dystonia with caution and consult with qualified healthcare professionals like Planet Ayurveda's Expert team for appropriate diagnosis and treatment.

I've had Dystonia since I was 21. I turned round to my wife and said is my head shaking? No why? Please look at it I can feel it moving. So I went to see my doctor, who kept saying everybody's head moves. Yes, I know that but my head is moving all the time. I'll give you this medication and that should help. It never did. Then after two years, I started to get these ticks and spam's all over my head and started moving where ever it wanted to. And we had our daughter and she was only three weeks old. And I knotted her right in her face. The thing is I could have killed her not knowing when they were going to come on. That's when I thought I can't go on with this no more. So we had to take her to the hospital I had to explain to the doctors that it was me who knotted her in the face. We had social services the police and everyone else questioning me about what I did. If it was;t for this surgeon who looked at me and saw my head shaking knotting from left to right. They would have taken my daughter off us and I would have been arrested for cruelty to a child, And he said to me how long have you been like this with not only your head but your full body. So I told him. And sent me to have these x-rays of my brain and he said you have a condition called Dystonia. I thought thank God someone has noticed it. Not knowing what it was. But I still was worried about my daughter. Because she was also having X-rays on her face and head. Luckily enough she was okay. Then I started having Botox in the back of my neck to steady the ticks. They never worked after having them for three years. In the end, I had deep brain stimulation. And even now at 58 I'm still suffering where all my toes are more like a claw and turned in. And get cramps in every part of my body. Now I'm in a wheelchair walking about with a Zimmer frame and walking sticks. The only thing they can do with my toes is break every one of them. Plus have another brain operation. I get fed up with me falling and being black and blue with bruises all over my body not even knowing I've even fallen. I've broken my leg twice and broken bough my eye sockets. I wouldn't wish it on my worst enemy

Thank you for sharing, Karla Long Happy Life.😊

Cervical Dystonia can't be cured.... it's won't ever go away once it comes on. I have it, I have had it for 5 years after I fell down a cement flight of stairs and hurt my tailbone which caused the nerve damage. Cervical Dystonia comes on by surgery or a bad accident that changes your nerve system. Once it's damaged it can't be repaired.

I have dystonia to it’s hard for me because I go to the hospital when my dbs is off

She didn't give much info on what the treatment entailed, but I did find it interesting when she mentioned "staring at dots on a wall." I have a severe pull on my left, and the right side constantly fights it, making me shake uncontrollably and giving me intense pain. But one night, I saw a video about looking as far left as you can for 30 seconds and then the same on the right, and it did give me temporary relief. The video was about resetting certain nerves. I really wish she had gone into more detail on the treatment.

HI Karla, my daughter who has a dentistry past, now has this condition also. What do you think caused yours? Happy you are getting help.

Thanks for sharing your story. I was diagnosed with FND (motor) a few years ago. My story is sooo similar to yours! It started as a neck muscle issue. I had emgs that should it was in a spasm. I had PT, chiropractor visits for years. Craniosacral treatment, acupuncture, etc etc. Nothing helped. Then the movements started. My neck would just whip to the side. Then it spread to my arm and trunk (all on left side). I've made funny videos to cope with the uncertainty. Doctors just passed me around, agreed it was FND. I'm in constant pain. It's been over a decade. I'm a young mom too. Wish I could get the help you were able to find.

I hvala vam sto ste podijelili pticu da nama😊

Moj si ima 36 god pati od cerikvalne dostojnije vratni misica vec 5 godina odao je kod mnogi doktora i razne masaze uključujući i elektro stimulans nsta .dabi mu tek prije 2 mj neurolog dao konacnu dijagnozu tortikolis ili cerikvalna distonija..prije 15 dana je dobio tri botuks inekcije vjer tip A ali i dalje i ma pomjeranje i trzanje vratnih misica tj kontrakcije .😢

Does anyone offer this treatment near Milwaukee? Thanks for sharing. I have cervical dystonia too and need help.

Never met any one in my life that has it.

Sounds expensive!, I m looking up your recommendations, " cervical dystonia" its a bitch.

Does anybody know who treats lingual dystonia? Thanks

What doctor treat you??and we’re???

Nice story . But how people like me can benefit from it ????

Can you please share the doctor full name do you taking any medicines.

Can you please write your treatment in comment

Hi Karla, did you get lasting relief from this therapy? Is CD coming back ever since you took this therapy?

I'm having a CD been 5 months already. I'm kinda depressed😭

I didnt hear the cervical dystonia diagnosis. I got a CD diagnosis within 2 secs of being in the neuro office. Seems like this was deeper then CD

Thank you for sharing your story. I am considering going to get this therapy. I have lived with cervical dystonia for over 40 years and have tried many different types of therapies to treat the cervical dystonia. I'm wondering if this therapy can help me like it has helped you. Thank you

Hey Karla I’m going through the same situation at the moment thanks for the advice

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