This Is Lupus

Thank you for posting your video. I'm experienced a painful condition for over a year and a half and the doctor was not sure what I have. Some days are more challenging than others, but I always try to remind myself that others are going through much harder challenges than mine. No one needs to look far to see someone else who is going through more and at the same time a good example of a positive good sport in life and an example to everyone.

This is something people need to hear about and help the cause. Also thank you for posting this video up :)

I miss Dr. Manzi so much. I believe because of her, Dr. Domsic and her staff I am still doing well. I have good care at UNC-Chapel Hill but Dr Manzi is my hero. Everything she says is true. Miss you!

Good 4 u shayluvsmj! Don't let lupus take over,I was diagnosed in 1987 eye was 9yrs and after that 8 days before my 11th b-day eye had a stroke. Im 32 now and believe me lupus bites lol.

@PuppiesandSunshine Supposedly many people get a rash on their face in the form of a wolf mask, sometimes represented as a butterfly as well. That I think is the reason but please correct me if I'm wrong.

GOD PROMISED TO HEAL ME i was diagnosed with lupus IV nephritis @ the beautiful age of 21, it was very aggressive. god blessed me with a wonderful supportive parents, family, friends,group of doctors and sent a great man into my life. god sent through this man that i was going to be okay to, to not be scared and that he (god)was with me. under went kemo theropy and 1year before treatment was over i was healed like he promised stop treatment and now pregnant with my frist child. god is true

i guess i am sooo screwed.. :-(((((((((((

Salve a Tutti Chi puo' Aiutarmi, o Mia Figlia di anni 35 a Il lupus 2004 Qui non Riescono a Tamponare la sua malattia ora Siamo Costreti a Fagli Fare Una trafusione di Sangue ogni 2 Settimane xke non riescono a tamponare La malattia al POLICLINICO 2 DI NAPOLI ITALIA Siamo Disperati i Valori sono Sempre bassi I cobli rossi bassi il rene non funziona bene chi puo' aiutarci Siamo Distrutti Grazie non capisco la lingua americana solo ita.

I had a friend who's mom had lupus. When I heard about it I had no idea what it was. I ended up looking up 1000 faces and saw it explained everything I've been going through. I may be obsessed with finding the diagnosis to my problem, but I think I'm just too afraid of finding the diagnosis on this. Hopefully SCIENCE comes through and finds a cure.

@poker7499 The more you deny lupus the worse off you are. The meds help to protect your organs from lupus. You will suffer a great deal of pain and the lupus will flare up until you end up in the ER with damage that could have been avoided.

I'm 25 years old and i just found out i have Lupus I'm scared I never been so scared in my whole life

My bestfriend since 4th grade just found out she has lupus... she was 15 when she found out.

@yoyad your parents sound very beautifull and strong. I will pray for yall

I was diagnosed with Lupus in the early 90's, it is so painful. I have had kidney failure, liver failure & so much joint pain & swelling. Now it has affected my heart & my pancreas. One of the worse things I go throughis the misunderstanding when people say, but you don't look sick, I have been called a hypochondriac, a liar, a drug seeker, & that was by medical professionals. I had to give up my, I am a surgical technologist & can no longer do the strenuous work, It is hard & scary

@sascha2674 it took them years to funally diagnose me with Lupus. Why don't you start a support group? It would help so many to not feel so alone. I know when I was first diagnosed, I felt like I was the only one in the world who had this disease. Bless you & much luck to you

I have also had 2 strokes, but I try to stay positive. I just want people to be educated & pray that none of my friends or family have to go through this. My sister passed away with breast cancer, but she also had Lupus which I am convinced made it harder for her to fight the cancer, since it pretty much wipes out your immune system

I recently met a young woman with lupus... I didn't quite understand what it was or how it affects people but after watching this, I have so much more respect for how positive and joyful she is. Her kidneys are in a lot of trouble but she remains so optimistic. The lucky who aren't affected by major illnesses could learn so much from people like this. I'm truly considering if I'd be the right tissue and blood match for my friend so she could have one of my kidneys. God bless everyone here xx

@ravonparish Thankyou : )

im 14 and a twin and me and my sister were diagnosed with lupus she at age 11 me at age 12 i lost all the hair on the top of my head and lost a rapid amount of weight i had 2 be homeschooled in the 6th grade and my sisters kidneys failed had 2 be in the hopistal 4 weeks got out had a seizure went back 2 the hospital 4 much longer and now has dialysis every mon tues thurs and sat had to be homeschooled as well but now were both in school and hangin in there with love and support from family, GOD

I have had SLE for 2 years now. I am a 24 year old mother of a 2 year old son. I hope that there will be a cure one day and I want to feel healthy again. Did that lady get cured from stem cell transplant????

It's not lupus

@poker7499 forever!! I'm living proof without meds for 3yrs way better & by the way Medications killed super producer JDilla

@taylorcam321 You both are in my prayers.

My mother has Lupus, but she has a very unique form.. Its been in remission since they found it, just before I was born... =/

@MushroomSlappa69 And that's not funny.

@rockcityaudio - Thanks for having the courage to put this on here. I'm going to give the monk a go. I studied Buddhism for several years but got off track. Maybe it's time I got back on again. Thanks for the reminder.

@LisaVanAllen very true this is how I finally got diagnosed

Jeesh.... just cried my eyes out.

I have Fibromyalgia and am going through the tests to confirm Lupus. Hang in there :(

so is lupus like cancer ?????????

Lupus can be as bad as cancer. Some cancers can be cured or eliminated. Some lupus sufferers have a painful life without cure. Every case is different.

Ok now im scared selina gomez has this not helping

my coworker's wife died today due to this disease

Going to sleep and waking up a month later. That is EXACTLY what happened to me when I was first diagnosed with Lupus. 

I am lupus my.biggest fear is nothing,knowing the condition is knowing the cure.I take care my self, even sometimes is overwhelming and stopping the treament is putting my life in danger, my niece die in August of lupus complications this year she was only 22.take good care kidneys.don't consumed salty food or high in potassium.

In your story. It is similar to mine but mine is a long time being diagnosed

My lupus, I had this illness since I was 22 now I'm 52 I have marked on my face my hair is thin and bald spots all over, I'm on disability and I work part time I have no children and I'm alone .I'm scared now that I'm older my husband died my mom is gone I'm alone

Thank you for this post...and blessings to those who have this dreaded disease.

I have this disease and the remarkable thing is that it effects different patients very differently.  The experiences in this video are on the severe end of the lupus spectrum.  I have 4 healthy children and while I have challenges, to be sure, (THANK GOD for prednisone), a person can live and thrive with this disease.  I have found making contact with other patients CRITICAL to my emotional well-being.  I suffered alone for years, due to a general lack of understanding of the disease even among medical professionals!   But YOU DON'T HAVE TO.  Go to the Lupus Walk, contact your state lupus org, look at the LUPUS Foundation of America Website - GET CONNECTED WITH OTHERS.

It's not Lupus

Yes its a huge life changer and I know I have lupus at first I thought I had elephantitis?  Now I have placquenal pain killers etc and I also have lung issues so im preying I keep it at bay HOPE FOR MORE RESEARCH its what we need...............

OH MY RIP KASSIE MAY YOU LIGHT THE HEAVENS AS BRIGHT AS A STAR GOD BLESS YOUR BABYS AND FAMILY A LUPUS SISTER LESLIE IN LAS VEGAS. THIS SCARES ME TO HEAR KASSIES STORY,IS HERS A RARE CASE OF LUPUS?

my friend died of lupus yesterday...

mi nombre es Aida luz. Fernández. .soy colombiana. padezco. les. y estuve. mal.diagnóstico. varios años. .. que vascuituluis. que. púrpura. que artritis. ..

actualmente. me trata. el ..DC. .Renatogusman

instituto ID EARG

Bogota. Colombia

Dios es mi. doctor de cabecera

I have been diagnosed with Lupus and Fibromyalgia. I have had so many sleepless nights afraid that I may not be awake the next morning. Lupus have stolen a lot from my life. It has impacted my career, my social life, my mental state. I wish we can find a cure in my lifetime. I dream of being normal again

a blood test is available -  a positive  Double Stranded DNA